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WG - Pediatric and Congenital Heart Disease
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Disease Study Group - Pediatric and Congenital Heart Disease

Welcome to the Pediatric and Congenital Heart Disease CMR Interest Group,

Mission Statement

"To promote cardiovascular magnetic resonance in pediatrics and congenital heart disease in the areas of clinical care and research, to  further education in this imaging modality and to serve as a forum for issues that are common to all practicing in this field. The group also strives to raise awareness of this imaging modality and to act as a catalyst for collaborative work along with being a resource in pediatrics and congenital heart disease for SCMR and other health care organizations."

An Executive Committee was formed by election, currently including the following colleagues:

Chair: Dr. Mark Fogel
Dr. Andrew Powell
Dr. Margret Samyn
Dr. Tiffanie Johnson
Dr. Beth Printz
Dr. Rajesh Krishnamurthy
Dr. Emanuela Valsangiacomo-Buechel
Dr. Lars Grosse-Wortmann

If you would like to get involved, please contact Dr. Mark Fogel at fogel@email.chop.edu‎.

If you would like to make an announcement on this website, related to pediatric / congenital CMR, please contact the SCMR Website Editor for Pediatric / Congenital Heart Disease content Dr. Tarique Hussain attarique@doctors.org.uk

CURRENT CLINICAL PRACTICE INITIATIVE

A survey to collect information on the practice of cardiovascular magnetic resonance in patients with pediatric or congenital heart disease by center/program is now complete! It shows the scope of our work and the heterogeneity of practice throughout the world. It will no doubt help us in service standard setting within our individual centers and extended networks. 

A document entitled "Guidelines and Protocols for Cardiovascular Magnetic Resonance in Children and Adults with Congenital Heart Disease" is now completed. It is available at: "Journal of Cardiovascular Magnetic Resonance 2013, 15:51  doi:10.1186/1532-429X-15-51"

A document entitled “Guidelines and Protocols for Cardiovascular Magnetic Resonance in acquired Pediatric Heart Disease” is in preparation. The working group is writing a document on a “how-to” of pediatric non-congenital heart disease by CMR. It is a companion piece to the article above. It will cover protocols for diseases such as cardiomyopathies, connective tissue diseases, pericardial diseases, tumors, etc. The purpose is mainly to serve as a guideline to help standardize protocols and serve as a go-to reference for people performing scans. Timeline: Draft preparation for Nice in early 2015. Lead: Adam Dorfman, MD (email: adamdorf@med.umich.edu)

CURRENT RESEARCH INITIATIVES

Pediatric Myocarditis Research Group

Given the paucity of data on CMR findings in children with myocarditis, we are pursuing a multicenter, retrospective review of CMR findings in children diagnosed with myocarditis in order to better inform future prospective trials. In addition to describing the CMR findings in this population, the study will also assess institutional variability in the use of CMR and specific CMR protocols in this cohort, correlate the CMR findings with other clinical data such as echocardiogram and endomyocardial biopsy, and attempt to identify CMR predictors of clinical outcomes such as death and need for transplantation. The project has attained IRB approval at Children's Hospital Boston, which will serve as the primary site and core lab, as well as several additional institutions, and a case report form has been developed and reviewed by the working group and a multicenter RedCAP database for data entry is in development. For more information, please contact Puja Banka, MD (puja.banka@cardio.chboston.org).

Hypertrophic Cardiomyopathy

Contact Dr Ashwin Prakash (Ashwin.Prakash@cardio.chboston.organd Lars Grosse-Wortmann (lars.grosse-wortmann@sickkids.ca).

Kawasaki Disease

Contact Dr Gerald Greil (gerald.greil@kcl.ac.uk) 

EDUCATIONAL ACTIVITIES

We encourage congenital and pediatric submissions for CASE OF THE WEEK. These cases are instructive cases or cases which are great illustrative examples. They can also be cases that generate discussion regarding management. This type of discussion is linked to the FORUM and generates a database of experience across centers.

We encourage involvement in this activity from all levels.

 

 

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