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about the SCMR Registry

The SCMR Registry is designed to support the mission of the SCMR, “To improve cardiovascular health by advancing the field of CMR”, by:

  • Promoting evidence-based utilization of CMR through a collaborative global effort.
  • Providing a web mechanism for CMR centers to upload de-identified patient data, CMR indications, and images that incorporates state-of-the-art data security and privacy standards.
  • Providing a mechanism of tracking patient outcomes (death, events).
  • Supporting global access to make registry data available to the wider CMR research community.

  

Why should I contribute data? 

  • Opportunities for research, collaboration, and generating publications that prove the value of CMR to the benefit of the entire field.
  • Each center will maintain control of its own data, opting in or out of any approved research study.
  • Quality assessment features (under development) will improve your CMR service.
  • A Registry Connector system is being developed to automatically upload data into the Registry from existing imaging and reporting systems.

 

How do I contribute data?

There are two ways to participate in the SCMR Registry: as a data contributor, and as a researcher.  
More information on the processes required for both can be found in these slides:

How to participate in the SCMR Registry | PDF

If you wish to join and contribute data to the Registry, the first step is for your institution to sign the Participation Agreement:

SCMR Registry Participation Agreement | PDF

 

Participating Centers

  • Carolinas Medical Center, Charlotte, North Carolina , USA
  • Duke University, Durham, North Carolina, USA
  • Houston Methodist Research Institute, Houston, Texas, USA
  • Piedmont Heart Institute, Atlanta, Georgia, USA
  • Salinas Valley Memorial Hospital, Salinas, CA, USA
  • St. Vincent Heart Center of Indiana, Indianapolis, Indiana, USA
  • The Cleveland Clinic, Cleveland, Ohio, USA
  • The Ohio State University, Columbus, Ohio, USA
  • University Hospitals of Cleveland, Cleveland, Ohio, USA
  • University of Illinois in Chicago, Chicago, Illinois, USA
  • University of Minnesota, Minneapolis, Minnesota, USA
  • Virginia Commonwealth University, Richmond, Virginia, USA
  • Weill-Cornell Medical Center, New York, New York, USA

 

Active Research Projects

Project: Sex-based Differences in Left Ventricular Remodeling in Patients with Chronic Aortic Regurgitation
Principal Investigator(s): Deborah Kwon, MD
Lead Institution(s): The Cleveland Clinic
More Information
 
Project: Prevalence and Prognostic Significance of Small Myocardial Infarcts Detected by CMR in 18,000 Patients with Normal Contractile Function: A Multicenter Study with Ten Years of Follow-up
Principal Investigator(s): Han W. Kim, MD
Lead Institution(s): Duke University
More Information
 

Project: Cardiac Magnetic Resonance to Assess Impact of  Aortic Regurgitation and  Myocardial Scar on Clinical Outcomes The AR SCAR Multicenter Study
Principal Investigator(s): Dipan Shah, MD; Maan Malahfji, MD
Lead Institution(s): Houston Methodist Institute

More Information
 
Project: Tetralogy of Fallot Biventricular Shape Atlas
Principal Investigator(s): Michael Jay Campbell, MD; Alistair Young, MD
Lead Institution(s): Duke University; King’s College London
More Information
 
Project: Using Neural Networking to Develop a Novel Cardiac Magnetic Resonance-based Model to Predict Cardiac Amyloid Subtype
Principal Investigator(s): Jeremy A. Slivnick, MD; Karolina M. Zareba, MD
Lead Institution(s): Ohio State University 
More Information


 

ACCESS REGISTRY DATA FOR RESEARCH - steps

  1. Review both the SCMR Registry Data Access Policy and the SCMR Registry Data Access Policy - Highlights.
  2. Submit a Search Request Form.
  3. Search requests will be reviewed according to the Search Request Review Process.
  4. Once your research project is approved, submit a  Data Access Application.
  5. Requests will be scored based-on set criteria described in the  Data Access Review Process and  Score Sheet.

 

Opportunity to fund your SCMR Registry-based research project

The National Heart, Lung, and Blood Institute (NHLBI) has an R21 grant mechanism specifically designed to fund research using existing datasets. These 2-year grants will fund up to $150,000 of direct costs and could help to fund, for example, patient follow up or the collection of clinical history data. The next deadline is October 28, 2020.  More information can be found here:

https://grants.nih.gov/grants/guide/pa-files/PAR-20-078.html#_Part_1._Overview

 

Visit this web page again in the future for new information.

If you have any questions, please contact: 

  • Registry Chair, Lon Simonetti at Simonetti.9@osu.edu or
  • Program Manager, Lauren Small at HQ@scmr.org

 

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