about the SCMR Registry
The SCMR Registry is designed to support the mission of the SCMR, “To improve cardiovascular health by advancing the field of CMR”, by:
- Promoting evidence-based utilization of CMR through a collaborative global effort.
- Providing a web mechanism for CMR centers to upload de-identified patient data, CMR indications, and images that incorporates state-of-the-art data security and privacy standards.
- Providing a mechanism of tracking patient outcomes (death, events).
- Supporting global access to make registry data available to the wider CMR research community.
Why should I contribute data?
- Opportunities for research, collaboration, and generating publications that prove the value of CMR to the benefit of the entire field.
- Each center will maintain control of its own data, opting in or out of any approved research study.
- Quality assessment features (under development) will improve your CMR service.
- A Registry Connector system is being developed to automatically upload data into the Registry from existing imaging and reporting systems.
How do I contribute data?
There are two ways to participate in the SCMR Registry: as a data contributor, and as a researcher.
More information on the processes required for both can be found in these slides:
How to participate in the SCMR Registry | PDF
If you wish to join and contribute data to the Registry, the first step is for your institution to sign the Participation Agreement:
SCMR Registry Participation Agreement | PDF
- Carolinas Medical Center, Charlotte, North Carolina , USA
- Duke University, Durham, North Carolina, USA
- The Ohio State University, Columbus, Ohio, USA
- University Hospitals of Cleveland, Cleveland, Ohio, USA
- University of Illinois in Chicago, Chicago, Illinois, USA
- University of Minnesota, Minneapolis, Minnesota, USA
- Virginia Commonwealth University, Richmond, Virginia, USA
- Weill-Cornell Medical Center, New York, New York, USA
HOW TO ACCESS REGISTRY DATA FOR RESEARCH
- Review both the SCMR Registry Data Access Policy and the SCMR Registry Data Access Policy - Highlights.
- Submit a Search Request Form.
- Search requests will be reviewed and scored according to the Search Request Review Process.
- Once your research project is approved, submit a Data Access Application.
- Requests will be scored based-on set criteria described in the Data Access Review Process and Score Sheet.
Opportunity to fund your SCMR Registry-based research project
The National Heart, Lung, and Blood Institute (NHLBI) has an R21 grant mechanism specifically designed to fund research using existing datasets. These 2-year grants will fund up to $150,000 of direct costs and could help to fund, for example, patient follow up or the collection of clinical history data. The next deadline is October 28, 2020. More information can be found here:
Visit this web page again in the future for new information.
If you have any questions, please contact:
- Registry Chair, Lon Simonetti at Simonetti.email@example.com or
- Program Manager, Lauren Small at HQ@scmr.org